Brainteaser

Finding a cure

Know your CSF

Know your CSF: Did you know that our bodies produce approximately a pint (500 ml) of CSF daily, continuously replacing CSF as it is absorbed? 

Under normal conditions there is a delicate balance between the rate at which CSF is produced and the rate at which it is absorbed. Hydrocephalus occurs when this balance is disrupted and the rate of absorption is less than the rate of production.

(Illustration by: Lynne Larson)

It's Brain Awareness Week!

It's Brain Awareness Week! Take a moment to share our resources about hydrocephalus! All booklets and fact sheets published by HA can be downloaded for FREE directly from our website or if you'd like a hard copy please contact us at info@hydroassoc.org. 

Today I came across a post on the Chiari Malformation/Syringomyelia Awareness Facebook support group and this person spoke about being told he has '10 - 14 years' and  that his family can't accept it, but he is trying to make the most of life now.   He is 31 years old and has a two year old son, whom he would love to see grow up.  

My first response was to call my doctor and ask how much time I had left?.....  I never thought of asking. 

But somewhere in the back of my mind I always thought I had a limited time left (we all do, but some more than others) and from time to time I would plan to make the most of life and live it the best way I could....travel, macro photography, enjoy my friends and family and just have a ‘drama free’ fun life. 

...But do I want to know!????  Would you?

Advocate